Welcome
           
    Thank you for visiting OHF’s website. OHF’s mission is to
    fight back against the number 1 birth defect, congenital
    heart defects (CHD), by funding vital and promising
    research, increasing public awareness and education, and
    supporting those affected by CHD.  
          
    Peter and I founded Olivia’s Heart
    Fund shortly after the death of our
    13 day old daughter, Olivia Marie
    Ostiguy. Although we had suffered
    the most tragic loss, we knew we
    could not turn our backs on the
    world of congenital heart defects.  It
    is our goal to give other parents
    hope, so that Olivia’s battle and
    death will never be in vain.  If Olivia
    had been born 20 years ago, we
    would have been given no other
    choice than to take her home to die.  
    Surgical advancements have allowed
    90% of children born with some form
    of CHD to survive into adulthood.  

    However, babies like Olivia, who are born with more complex
    heart defects, are still dying.  For instance, 25% of babies
    born with HLHS, the same heart defect as Olivia, will not live
    past the age of 5.  congenital heart defects are the number
    one cause of stillborn and infant death.  Of the 40,000
    infants born a year with CHD in the Unites States, thousands
    will not live to see their first birthday.  There are at least 35
    known heart defects to date, but there is no known cause or
    cure for any of them.
       
    Olivia’s Heart Fund aspires to be a premier organization
    funding vital and promising research focused on
    advancements in technology and cardiac-thoracic surgery to
    decrease the mortality rate of infants and children with CHD
    and research focused on finding the causes in order to
    reduce occurrence of babies born with CHD.  We need your
    help to give hope to these children and their parents.  We
    hope you consider joining our fight so that no child’s battle
    is ever in vain.

    Sincerely,
    Julie and Peter Ostiguy
    (Founders)
Olivia's Heart Fund presents
Heart Art





COMING FEBRUARY 2011
ARTIST LISA KRETCHMAN & PHOTOGRAPHER
JESSICA CORISTINE
This will be a truly moving multimedia art
project that will portray 20 families though
paintings and photography.  This project will
to raise awareness about CHD, raise money
for OHF to support research, and gift a
beautiful painting to the families that
participate. A win-win for all.

Learn more at Lisa's blog:  
http://blog.lisakretchman.com/2009/12/art-
hearts-for-olivias-heart-fund.html

For more information  Please email Kelli
Carlson at
kcarlson@oliviasheartfund.org  
Fighting back against congenital heart defects
-so that no child's battle is ever in vain.


SIBLING TREASURE CHEST






The Sibling Treasure Chest  was established at Children’s Hospital
Boston, Cardiac Intensive Care Unit (CICU) in January, 2009.  The
Sibling Treasure Chest was hand built  and has been filled with
thousands of toys  over the past year by generous donors. The
program is ongoing and supported by donations of new toys to
supply the Sibling Treasure Chest.  Toys are delivered on an as-
needed basis by Olivia’s Heart Fund board members or volunteers.

The Sibling Treasure Chest is for siblings of patients admitted in
the CICU to help foster a sense of belonging and inclusion during
a family’s time in the CICU. The Sibling Treasure Chest is also
designed to help parents, who often feel torn between their
children who are away from them and the child who is admitted in
the CICU.  It helps brothers / sisters feel secure and loved during
their sibling’s hospital stay.  

Toy drives for the Sibling Treasure Chest help to bring awareness
to the community regarding CHD.  The toy drives have occurred
at local businesses in RI and by various individual supporters of
OHF.

If you would like to contribute some special treasures for  the
Sibling Treasure Chest, here are some items that are needed

Ages 6 months - 12 yrs

-crayons and coloring books
- Sticker / craft books
- Art and craft items
- Crayola Wonder packages
- Puzzles (for toddlers and older kids)
- Magna Doodles
- Aqua Doodles
- rattles, blocks, dolls / stuffed animals, etc (for children under 1)
- Small Lego sets
- dolls
- Books for all ages
- Toys / activities that can be open and used immediately

The items need to be new due to sanitary issues.


Please send items to:

Olivia’s Heart Fund
C/O Sibling Treasure Chest, 20 Sanford Ave
North Kingstown, RI 02852

For more information, email
contact@oliviasheartfund.org
Our Mission
Our mission is to fight back against the number 1 birth defect, congenital heart defects (CHD), by funding
vital and promising research, increasing public awareness and education, and supporting those affected by CHD.  
Our mission is imperative to the future of children born with CHD.   100% of a donor’s contribution goes
directly to fulfilling our mission.  We fight back against CHD so that no child’s battle is ever in vain.
Upcoming Events

Coming October 2011
Olivia’s Heart Fund's
First Annual Gala






Roger Williams Botanical Gardens
Providence, RI
This event is sure to be a night to
remember at the beautiful Botanical
Gardens at Rogers Williams.
All proceeds
will directly benefit research for
congenital heart defects.  For more
information, email us at
contact@oliviasheartfund.org






Thank you to our sponsors!
Gold Sponsor:





CHD Warriors:






Atlantic Trophy, Coventry, RI
Ritzy Pics

Olvia's Angels:
The Goddard School,
South Kingstown, RI
Jim's Dock Restaurant
RE/MAX Preferred
Re/Max Patriot Properties
Westlakes Gas & Convenience,
Narragansett, RI


Join Olivia’s Heart Fund for the 1st
annual Strike Out Congenital Heart
Defects (CHD)!
Hit the lanes to raise funds for
congenital heart defect research.
This event is open to all ages.  Lots of
fun to be had, a great family event!  

Sign up to collect pledges
and you could win Red Sox Tickets, or
other great
prizes! (collecting
pledges is optional)
<click here for more info about the event>
Lanes will fill up fast!  
Reserve your spot now!
$15  per person, includes shoes!

2 sessions
9am-10:20am






10:30am-11:50











Questions?  Email Jim at
jcole@oliviasheartfund.org
or call us, (401) 263-8854
Who is bowling?
Who is bowling?
Olivia’s Heart Fund is a non-profit organization with 501(c)(3) tax exempt status.
Donations are tax-deductable to the fullest extent of the law.  

Olivia’s Heart Fund  |   P.O. Box 864, North Kingstown, RI.   |  (401) 263-8854   |   www.oliviasheartfund.org