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Welcome Thank you for visiting OHF’s website. We hope that you will find all the information you need to help us fight back against CHD, such as sponsorship opportunities, planning a fund raiser, donating, or attending an event. OHF’s mission is to fight back against the number 1 birth defect, congenital heart defects (CHD), by funding vital and promising research, increasing public awareness and education, and supporting those affected by CHD.
Heart Fund shortly after the death of our 13 day old daughter, Olivia Marie Ostiguy. Although we had suffered the most tragic loss, we knew we could not turn our backs on the world of congenital heart defects. It is our goal to give other parents hope, so that Olivia’s battle and death will never be in vain. If Olivia had been born 20 years ago, we would have been given no other choice than to take her home to die. Surgical advancements have allowed 90% of children born with some form of CHD to survive into adulthood.
complex heart defects, are still dying. For instance, 25% of babies born with HLHS, the same heart defect as Olivia, will not live past the age of 5. congenital heart defects are the number one cause of stillborn and infant death. Of the 40,000 infants born a year with CHD in the Unites States, thousands will not live to see their first birthday. There are at least 35 known heart defects to date, but there is no known cause or cure for any of them.
funding vital and promising research focused on advancements in technology and cardiac-thoracic surgery to decrease the mortality rate of infants and children with CHD and research focused on finding the causes in order to reduce occurrence of babies born with CHD. We need your help to give hope to these children and their parents. We hope you consider joining our fight so that no child’s battle is ever in vain. Sincerely, Julie and Peter Ostiguy (Founders) |
| Olivia's Heart Fund presents Heart Art COMING FEBRUARY 2011 ARTIST LISA KRETCHMAN & PHOTOGRAPHER JESSICA CORISTINE This will be a truly moving multimedia art project that will portray 20 families though paintings and photography. This project will to raise awareness about CHD, raise money for OHF to support research, and gift a beautiful painting to the families that participate. A win-win for all. Learn more at Lisa's blog: http://blog.lisakretchman.com/2009/12/art -hearts-for-olivias-heart-fund.html For more information Please email Kelli Carlson at kcarlson@oliviasheartfund.org |
Fighting back against congenital heart defects
-so that no child's battle is ever in vain.
-so that no child's battle is ever in vain.
| SIBLING TREASURE CHEST The Sibling Treasure Chest was established at Children’s Hospital Boston, Cardiac Intensive Care Unit (CICU) in January, 2009. The Sibling Treasure Chest was hand built and has been filled with thousands of toys over the past year by generous donors. The program is ongoing and supported by donations of new toys to supply the Sibling Treasure Chest. Toys are delivered on an as-needed basis by Olivia’s Heart Fund board members or volunteers. The Sibling Treasure Chest is for siblings of patients admitted in the CICU to help foster a sense of belonging and inclusion during a family’s time in the CICU. The Sibling Treasure Chest is also designed to help parents, who often feel torn between their children who are away from them and the child who is admitted in the CICU. It helps brothers / sisters feel secure and loved during their sibling’s hospital stay. Toy drives for the Sibling Treasure Chest help to bring awareness to the community regarding CHD. The toy drives have occurred at local businesses in RI and by various individual supporters of OHF. If you would like to contribute some special treasures for the Sibling Treasure Chest, here are some items that are needed (ages 6 months - 12 yrs): crayons and coloring books - Sticker / craft books - Art and craft items - Crayola Wonder packages - Puzzles (for toddlers and older kids) - Magna Doodles - Aqua Doodles - rattles, blocks, dolls / stuffed animals, etc (for children under 1) - Small Lego sets - dolls - Books for all ages - Toys / activities that can be open and used immediately The items need to be new due to sanitary issues. Please send items to: Olivia’s Heart Fund C/O Sibling Treasure Chest, 20 Sanford Ave North Kingstown, RI 02852 For more information, email contact@oliviasheartfund.org |
| Our Mission Olivia’s Heart Fund is a non-profit organization incorporated in the state of RI. OHF’s mission is to fight back against the number 1 birth defect, congenital heart defects (CHD), by funding vital and promising research, increasing public awareness and education, and supporting those affected by CHD. Our mission is imperative to the future of children born with CHD. We fight back against CHD so that no child’s battle is ever in vain. |
| Upcoming Events |
Coming October 2011 Olivia’s Heart Fund's First Annual Gala Roger Williams Botanical Gardens Providence, RI This event is sure to be a night to remember at the beautiful Botanical Gardens at Rogers Williams. All proceeds will directly benefit research for congenital heart defects. For more information, email us at contact@oliviasheartfund.org |
| Strike Out CHD @ Olivia's Heart Fund 1st annual Bowling Event Sunday, April 18, 2010 Old Mountain Lanes 756 Kingstown Rd. Wakefield, RI, 02879 Grab breakfast at The Coffee Shop and then come bowl for a good cause! Be the Kingpin & get pledges from all of your friends! Great prizes! $15 per person, includes shoes! Reserve your spot now, lanes will fill up fast! 2 sessions 9am-10:30am 10:30am-12pm For more information, email Jim at jcole@oliviasheartfund.org or call us at (401) 263-8854 |
