Olivia's Story

   Julie and Peter Ostiguy are the proud parents
of Olivia.  At 22 weeks pregnant, Julie and Peter
were told by doctors that Olivia had a complex
heart defect called Hypoplastic Left Heart
Syndrome (HLHS), essentially leaving her with
half a heart.  Cardiologists at Children's Hospital
Boston gave her a 90% chance of survival.  
   
   While performing the first of three scheduled
surgeries soon after she was born, doctors
discovered that Olivia's heart was much worse
than anticipated and she had an inoperable
coronary artery defect.  She came out of surgery
at 6 days old on life support. Olivia passed away
while awaiting a heart transplant.  She was just
13 days old.  
   
   Soon after Olivia lost her fight, Julie and Peter
decided to start Olivia's Heart Fund to help
others in their battle with congenital heart
defects (CHD) through funding vital CHD
research.  They are continuing Olivia's fight so
that no child’s battle is ever in vain and because
every baby deserves a chance to live.
Fighting back against congenital heart defects
-so that no child's battle is ever in vain.
Olivia’s Heart Fund is a non-profit organization with 501(c)(3) tax exempt status.
Donations are tax-deductable to the fullest extent of the law.  

Olivia’s Heart Fund  |   P.O. Box 864, North Kingstown, RI.   |  (401) 263-8854   |   www.oliviasheartfund.org